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updated: 6 March 2007
Other publications
The following section is intended to list information about publications in palliative care that might be of interest to those working in palliative care or related disciplines. It is not a comprehensive listing and the inclusion of a publication does not necessarily signify EAPC approval of its quality. While every effort is made to ensure the accuracy and validity of all entries, the EAPC does not accept responsibility for any inaccuracies or omissions
USA
Getting Started: Guidelines and suggestions for those considering starting a Hospice / Palliative Care Service
Contributors
Dr Derek Doyle (Editor) Founding Member and Adviser of the IAHPC (UK)
Dr. K S Chan (Hong Kong, China)
Dr Daniela Mosoiu (Romania)
Dr Alan Nixon (Canada and Saudi Arabia)
http://www.hospicecare.com/gs/
Publications national associations
FRANCE
Putting the plans for french palliative care into action.
Marilene Filbet, EAPC Board member EJPC101Filbet(E).pdf 
Mise en pratique des programmes de soins palliatifs en France
Marilene Filbet, membre du conseil d'administration EAPC EJPC101Filbet(f).pdf
SOINS PALLIATIFS : spécificité d’utilisation des médicaments courants
hors antalgiques. RECOMMANDATIONS
(Recommendations for the use of drugs in palliative care for symptoms other than pain)
The French agency for security of medical and sanitary products had established an expert group to prepare recommendations for a list of drugs used for the control of symptoms in Palliative Care other than Pain. The group has based their work on the current literature following the level of evidence (A to C)
This "guide for the use of drugs in palliative care is used to spread knowledge about symptom control to non palliative care specialists. They have been diffused in all health care services in France.
Marilene Filbet, EAPC Board member click here to download Only French version
Recommendations sur la spécificité d’utilisation des médicaments courants hors antalgiques
Les recommandations de lagence Française de sécurité sanitaire des produits de santé ont été établies par un groupe dexpert qui a travaillé sur les données de la littérature suivant les niveaux dévidence habituels (niveau A étude avec tirage au sort à C consensus dexpert)
Ce travail a été diffusé dans tous les établissement de santé servira de référence dans lutilisation des médicaments usuels des soins palliatifs et permettra de cette façon de divulguer les connaissances en soins palliatifs en dehors des services spécialisés.
Marilene Filbet, membre du conseil d'administration EAPC télécharger Only French version
SWITZERLAND
Euthanasia: a survey and a position paper of the Swiss Association for Palliative Care
Since the Swiss Association for Palliative Care (SAPC) considers itself as an important partner in the national debate on euthanasia, the Board decided to conduct a survey among its members. An anonymous questionnaire was sent to the members, consisting of multiple choice questions on positions that might be adopted in different hypothetical scenarios and one open question about the rationale for the answers. The response rate achieved with one mailing was 56%. The proportion of the respondents who were opposed to different forms of euthanasia were from 56% opposed to physician-assisted suicide to 84% to 90% to life-terminating acts without explicit requests (LAWER).
The main decisional bases drawn on for the answers were ethical values and the clinical or personal experience of the respondents. The most interesting findings concerned the qualitative analysis of the responses to the last open question on the rationale for the answers and its matching to the answers concerning the attitudes towards euthanasia illustrating the complexity of the topic (1). Based on this survey and a discussion among the members of the Board of the SAPC, a position paper with the following core sentences has been published in the journal of the national medical association (2):
Clinical and scientific experiences show that requests for PAS and DAE arise in the context of physical and psychosocial suffering, and are in an adequate treatment setting generally transient. Palliative care has made considerable progress in the clinical care of patients with sever and advanced diseases, a fact that has led to an important development of palliative care in certain countries. A national survey on the offer of palliative care has shown, that the offer of palliative care is insufficient, that there are considerable regional differences and that palliative care is still focused on patients with cancer. The SAPC considers it therefore inconsequent to gesetzlich verankern PAS and DAE in Switzerland before every severely ill patient in need has access to quality controlled palliative care. Furthermore, the SAPC wishes the offer of palliative care to develop and the public discussion on end of life care to continue.
- Bittel N, Neuenschwander H, Stiefel F: Euthanasia": a survey by the Swiss Association for Palliative Care. Support Care Cancer, online publication No 00520-001-0325
- Stiefel F, neuenschwander H: Euthanasie Der Standpunkt der Schweizerischen Gesellschaft für Palliative Medizin, Pflege und Begleitung (SGPMP). Schweizerische Aerztezeitung 2001; 82: 1609-1610
Prof. F. Stiefel
President of the Swiss Associaton for Palliative Care
A review of the volunteer movement in EAPC countries Federazione Cure Palliative, Italy
version française
During the 7th Congress of the European Association for Palliative Care (EAPC) in Palermo, Claude Fusco-Karmann, Kyriaki Mistakidou, Furio Zucco, Rosalba Canova and Katalin Heghedus presented the results from a recent survey on volunteer movement in EAPC member countries to assess the importance of their contribution to palliative care and to establish a Europe-wide network of volunteer organisations.
A total of 16 countries representing 715 palliative care associations and 29,000 volunteers participated in the survey with some surprising results.
An article entitled A review of volunteer movement in EAPC countries has been published in the September/October issue of the European Journal of Palliative Care where all the results are detailed.
click here to download
For further information or to contact participants, please visit the website of the Federazione Cure Palliative (http://www.fedcp.org).
An English version of the site is currently under construction.
Acknowledgements
We would like to thank the Federazione Cure Palliative ONLUS and Lega Italiana per la Lotta contro i Tumori (LICT) based in Milan for supporting the study and for collecting and processing the data; the EAPC and the Scientific Committee of the 7th Congress for their support and co-operation on the project, software engineers Fabio Carminati and Samuele Caruso, volunteers at LICT, for creating the software and processing the data.
The work was made possible by the generous collaboration and the commitment of all of the European colleagues who took responsibility for the following areas: Maurice Chausson Belgium, France, Luxembourg, the Netherlands; Kyriaki Mistakidou Croatia, Cyprus, Greece, Hungary, Rumania; the colleagues who collected data in the individual countries Micri Adriaensen, Anne Françoise Nollet and Betty Servais (Belgium), Anita Jusic (Croatia), Anna Achilleoudi (Cyprus), Rainer Sabatowski (Germany), Katalin Hegedus (Hungary), Regina McQuillan (Ireland), Ilene Cibulski (Israel), Hans Bart (the Netherlands), Costantin Bogdan (Rumania), Anna Novellas Aguirre de Carcer (Spain), Lars Nurbo (Sweden), Rosalba Canova (Switzerland).
Claude Fusco-Karmann, Gianna Tinini
Etude du mouvement des bénévoles dans les pays de l'EAPC Federazione Cure Palliative, Italy
A loccasion du 7ème Congrès de lAssociation Européenne de Soins Palliatifs qui a eu lieu à Palerme en Avril dernier, Claude Fusco-Karmann, Kyriaki Mistakidou, Furio Zucco, Rosalba Canova et Katalin Heghedus ont présenté les résultats dune enquête visant à établir dune part limportance du mouvement de bénévolat en soins palliatifs dans les pays de lAESP et dautre part à créer un réseau de communication entre les associations et au service du public.
Seize pays représentant 715 associations et 29 000 bénévoles ont participé à lenquête dont les résultats sont assez surprenants.
Un article reportant en détail ces résultats, intitulé: 'Etude du mouvement de bénévolat dans les pays de lEAPC' a été publié dans le numéro septembre/octobre du Journal Européen de Soins Palliatifs.
télécharger
Pour toute information ou pour contacter les participants, nous vous suggérons de visiter le site de la Federazione Cure Palliative Onlus (http://www.fedcp.org). Une version en langue anglaise est en phase délaboration.
Remerciements
Nous désirons remercier la Federazione Cure Palliative Onlus et la Lega Italiana per la Lotta contro i Tumori (LICT) de Milan qui ont donné leur appui à lorganisation et à lélaboration des données de lenquête; lAESP et le Comité Scientifique du 7ème Congrès pour leur support et leur coopération; les ingénieurs informatiques Fabio Carminati et Samuele Caruso, bénévoles de la LICT qui ont élaboré le software et les données.
Ce travail a pu être réalisé grâce à la collaboration généreuse et à la participation enthousiaste des collègues Européens qui se sont assumé la responsabilité des groupes de pays suivants: Maurice Chausson Belgique, France, Luxembourg, Pays Bas; Kyriaki Mistakidou Chypre, Croatie, Grèce, Hongrie, Roumanie; des collègues qui ont recueilli les informations dans les différents pays Rainer Sabatowski (Allemagne), Micri Adriaensen, Anne Françoise Nollet et Betty Servais (Belgique), Anna Achilleoudi (Chypre), Anita Jusic (Croatie), Anna Novellas Aguirre de Carcer (Espagne), Katalin Hegedus (Hongrie), Regina McQuillan (Irlande), Ilene Cibulski (Israel), Hans Bart (Pays Bas), Costantin Bogdan (Roumanie), Lars Nurbo (Suède), Rosalba Canova (Suisse).
Claude Fusco-Karmann, Gianna Tinini
Spain
The Spanish Society for Palliative Care's (SECPAL) Basic Recommendations for Training in Palliative Care (download in Word 6) For information about the association, please visit their website http://www.secpal.com/
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