Publications

European Journal of Palliative Care:
English version
Version Française

Palliative Medicine

EAPC news and views

Nouvelles et points de vues de l'EAPC

EAPC publications

Other publications

Books
Films
Electronic Publications

EAPC News 2001-02 (GB)
NouvellesEAPC2001-02(F)

EAPC Newsletter 2000 GB)
EAPC Newsletter 2000 (F)

"Oral feeding difficulties and dilemmas. A guide to practical care, particularly towards the end of life" has been prepared by the Royal College of Physicians in conjunction with the British Society of Gastroenterology in response to continuing unease about the lack of consensus, including among doctors, about when artificial nutrition and hydration is appropriate.

The ultimate aim of the report is to improve care by providing healthcare professionals, patients, their families and carers with practical advice that has a sound legal and ethical basis, and to prevent distressing and complicated disagreements.

www.rcplondon.ac.uk/pubs/

Manual de Medicina Paliativa

«Los autores de este libro de texto son profesionales de cuidados paliativos con larga trayectoria junto al enfermo en programas pioneros.También son docentes expertos e imparten con éxito clases de cuidados paliativos en diversas Universidades españolas y en tantos otros foros de España y de todos los países del mundo de habla hispana»
EDUARDO BRUERA. MD Anderson Cancer Center, Houston, USA

«Este libro no solo te guiará como estudiante: al mejorar tus conocimientos en medicina paliativa, también conseguirá mejorar la sanidad en todos los países de habla hispana en las próximas década»
STEIN KAASA. St. Olavs University Hospital, Trondheim, Noruega

To order it:
email: - http://www.eunsa.es

Family Carers in Palliative Care
A guide for health and social care professionals
Edited by Peter Hudson and Sheila Payne

This book provides an evidence-based, practical guide to enable health and social care professionals to assess and respond to family carer needs. It also explores the wider sociological, policy, and research issues related to family carers and palliative care.
More information at http://www.oup.com/

AAHPM Introduces UNIPAC QR: A Quick Reference Guide

July 2009 – The American Academy of Hospice and Palliative Medicine (AAHPM) is pleased to announce the availability of the UNIPAC QRTM. This quick reference guide provides tabular and graphic content from the third edition of the Hospice and Palliative Care Training for Physicians: UNIPAC Self-Study Program. Practicing physicians and clinicians who work with patients with advanced disease will find this publication useful in their practice. It contains up-to-date material on various aspects of hospice and palliative medicine including: pharmaceutical, regulatory, ethical, and psychosocial. The many interventions described can be particularly effective for improving quality of life of pediatric, HIV, and other complex patients such as those with heart, lung, or cognitive impairments. This publication is available in soft cover or pda format.
For more information go at www.aahpm.org

These guidelines build on the Quality Requirements in the National Service Framework for Long-term (Neurological) Conditions (LTNCs) to explore the interaction between specialist neurology, rehabilitation and palliative care services, and how they may best work together to provide long-term support for people with LTNCs and the family members who care for them. The guidelines also provide practical advice for clinicians when caring for someone with an LTNC, as well as outlining indications for specialist referral.
For more information please visit www.rcplondon.ac.uk/pubs/brochure.aspx?e=244

L’ultimo viaggio
Consigli per chi accompagna alla fine della vita
Nicoletta Ghilotti

Dalla Prefazione:
È benvenuto qualunque contributo, come quello contenuto nelle pagine di questo breve libro, che possa aiutare la famiglia di un malato che si avvia verso la fine della vita a partecipare nel modo più appropriato alle cure domiciliari del proprio caro, soprattutto se questo contributo viene fornito da una infermiera che ha acquisito competenze specifiche in questo campo attraverso il proprio lavoro svolto con grande passione in questi anni.
Carlo Peruselli
Direttore SC Cure Palliative ASL Biella
Sommario del volume: Un cammino personale e professionale • I bisogni del malato • I bisogni della famiglia • Bisogno di assenza di dolore • Bisogno di sentirsi pulito e in ordine • Bisogno di alimentarsi • Bisogno di eliminare • Bisogno di muoversi e mantenere la posizione • Bisogno di respirare • Bisogno di riposare e dormire • Bisogno di terapie adeguate • La fine. I bisogni del morente • Il lutto • Cure palliative e hospice • Medici e infermieri di cure palliative • Carta dei Diritti dei morenti / Carta dei Diritti sul dolore inutile • Bibliografia
http://www.effata.it/

This new Working Party report published by the Royal College of Physicians focuses on the philosophy of palliative care; the issues facing palliative care; oncological experience and its application to other diseases; mental health problems in palliative care and the organisation of palliative care and workforce provision.
The report will be relevant to all doctors and allied healthcare professionals and is essential reading for healthcare planners and commissioners of palliative care services.
There is increasing recognition that the principles of palliative care medicine can be implemented beneficially across most of the NHS and within most specialties. This report therefore reflects the shift in practice from predominantly cancer care to a much broader application. It includes recommendations on disseminating best practice both for those with terminal illness and for those with incurable illness earlier in the disease trajectory. Looking to the future, there is specific consideration of changing demographics, the importance of interdisciplinary care, the dissemination of care pathways, and new funding models.

Palliative care deals with an area of modern medicine that raises many ethical dilemmas, both in respect of treatment decisions and the formidable obstacles in undertaking research. For although palliative care is generally considered a ‘good thing’, it should be subject to rigorous scrutiny and justification of both process and fundamental precepts.
As end-of-life care may affect us all at some time, this report deserves a wide readership and detailed consideration of its comprehensive recommendations.

http://www.rcplondon.ac.uk/news/news.asp?PR_id=383http://www.rcplondon.ac.uk/pubs/brochure.aspx?e=240

Paul Sinclair

This book's striking message is that palliative care does not deliver on its aims to value people who are dying and make death and dying a natural part of life. Applying Social Role Valorisation, it argues for the de-institutionalisation of palliative care and recommends an alternative framework to current approaches.

The American Academy of Hospice and Palliative Medicine (AAHPM) releases the fourth edition of its Primer of Palliative Care publication. Newly updated and expanded, this introductory guide is perfect for those who care for chronically and terminally ill patients or are interested in incorporating basic palliative care principles into their practice.
For more information www.aahpm.org

This book is a now classic analysis of social work as a discourse between three aspects of practice: social order, therapeutic and transformational perspectives. It enables social workers to analyse and value the role of social work in present-day multi-professional social care.

This completely re-written second edition explores social work's struggle to meet its claim to achieve social progress through interpersonal practice. Important features of this new edition include:

• practical ways of analysing personal professional identity;
• understanding how social workers embody their profession in their practice with other professionals;
• detailed analysis of current and historical documents defining social work and social care analysis of values, agencies and global social work.

This new edition will stimulate social workers, students and policy-makers in social care to think again about the valuable role social work plays in society.

Malcolm Payne is, Psycho-social and Spiritual Care, St Christopher's Hospice, London, Emeritus Professor, Manchester Metropolitan University and Honorary Professor, Kingston University/St George's Medical School.

For more information click here

This book covers all the relevant aspects of communication in cancer care, such as communication in cancer prevention and genetic counselling, communication at different stages of disease and communication with the family and children. In addition, more general topics are discussed, such as the benefits and evidence of communication skills training and the challenges of interdisciplinary and cross cultural communication. Besides useful information on direct clinical relevance, current theoretical frameworks and research on communication in oncology are presented. The chapters are written by leading figures in the field of psycho oncology and communication, who work and teach in different European countries.

Contents: Key elements of communication in cancer care. Motivating for cancer prevention. Communication in breast/ovarian cancer genetic counselling. Informing about diagnosis, relapse and progression of disease and communication with the terminally ill cancer patient. Maintaining hope: communication in palliative care. The patient and his family. Children with cancer. Interdisciplinary communication. Cultural aspects of communication in cancer care. Current concepts of communication skills training (CST) in oncology. CST in oncology: it works!
Comments on the scientific evidence. CST in oncology: open questions and future tasks.
For more information click here

a book written by Lorraine Kember, is a powerfully moving and inspirational TRUE story about her husband's courageous battle with mesothelioma (asbestos related cancer) and her emotional journey as she cares for him. This touching book includes helpful information on topics such as: Cancer pain management, symptom control, Palliative Care, Quality of Life, Coping with grief. Diary excerpts and poems Lorraine penned along the way are interspersed throughout this book and further depict the depth of their love for each other, the sense of helplessness she experienced on his diagnosis and her growing strength as she comes to realize that there is much she can do to improve the “quality of his life”. This book has been highly recommended by the Cancer Council, as well as numerous other organizations and doctors for those who have – and particularly those who care for – loved ones with cancer of all kinds.

To read more about this book or order it online, please visit her website http://www.cancerthroughacarerseyes.jkwh.com