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PAEDIATRIC PALLIATIVE CARE – selected resources
Conquering your child’s chronic pain
by Lonnie Zeltzer and Christina Blackett Schlank
This book has been written by one of the pioneers and leading thinkers in the area of chronic pain in children. It is easy to read, and shows in a precise and scientific way , the clinical and psychological aspects of children’s chronic pain. It is written for the parents of children with chronic pain but is a very usefull tool for any healthcare worker, developping the different approaches to treatment. I highly recommend it.
Dr Chantal Wood
Unité de Traitement de la Douleur
Hôpital Robert Debré
48 Bd Serurier
75019 Paris
PAEDIATRIC PALLIATIVE CARE – selected resources
• Basic symptom control in paediatric palliative care 2005
The 2005 edition of Rainbow Children’s Hospice Guidelines: Basic symptom control in paediatric palliative care (written by Dr Satbir Singh Jassal) is now available as a free download on the ACT website: http://www.act.org.uk
The What’s New section gives details of upcoming conferences and you can also enter details of your service for inclusion in the International Directory of Children’s Palliative Care and Hospice Services now under development. Please visit http://www.act.org.uk
• The International Children’s Palliative Care Network (ICPCN) is a global network of children’s hospice and palliative care services: http://www.icpcn.org
• PaedPalCare – An international email discussion group for those working with children with life-limiting conditions. The group is hosted by ACT and currently has over 600 members across the world. To join the group send a blank email to
• Guide to the Development of Children’s Palliative Care Services – 2nd edition, a joint publication from ACT and the Royal College of Paediatrics and Child Health, reflects the many recent changes in children’s palliative care in the UK. The Guide is available to ACT members for £5 and to non-members for £10. Order via the ACT website at http://www.act.org.uk or mailto:
• Materials on paediatric palliative care.
IPPC – the Initiative for Pediatric Palliative Care – a consortium of organisations that work together to improve care and quality of life of children and families. It is an initiative of EDC’s Centre for Applied Ethics and Professional Practice (CAEP). Website offers some useful resources including quality improvement tools, videos and a curriculum which is under development. More resources are planned – you may have to register to download tools. Website: http://www.ippcweb.org
• Cancer Pain Relief and Palliative Care in Children, WHO, 1998
Available in English, French, Spanish and Italian.
To order: Email:
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