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  Submission date: 22 Aprile 2010

The development of education curricular for healthcare professionals working in paediatric palliative care.

Description:  This project sets out to explore the range of paediatric palliative care educational programmes available across europe and to draw common themes and elements of these programmes into a core curriculum.  Programmes for all healthcare professionals will be considered.

Plan of work:

  • Identify education programmes currently provided for healthcare professionals working with children with life-limiting conditions
  • Recognise and utilise work of previous EAPC task forces on education including: nursing, physicians, and psychologists
  • Compare and identify core components of curricula
  • Liaise and collaborate with colleagues throughout Europe regarding education programmes provided

Goal: To produce a core curriculum for healthcare professionals working in paediatric palliative care in Europe

Aims & objectives:

  • To gather information on education programmes for healthcare professionals caring for children with life-limiting conditions requiring palliative care in different European countries.
  • To identify core components of education programmes currently provided for healthcare professionals caring for children with life-limiting conditions in Europe
  • To identify core aspects for curricula and develop a framework for education for healthcare profssionals working in paediatric palliative care.
Background:

Appropriate and ongoing education and training of staff is an essential component in the provision of care for children requiring palliative care. 

The Impacct standards for paediatric pallaitive care in Europe (2007) recommend:

  1. All professionals and volunteers working in paediatric palliative care should receive comprehensive training and support
  2. Pallaitive care training must be a core part of the curriculum for all paediatric healthcare professionals, as well as realted sub-specialties
  3. Each country should develop a national curriculum for all professionals working in paediatric palliative care.
  4. There must be designated centres of excellence that can provide formal teaching and postgraduate training in all aspects of paediatric pallaitive care.

There is currently a dearth of information regarding edcuation programmes and courses for healthcare professionals working in paediatric palliative care in Europe.  Paediatric palliative care as a speciality is at various stages of development throughout Europe and education programmes and courses in this small but highly specialised field of healthcare are also at different stages. Whilst courses are available in many of European countries access to and content of these varies considerably.

This project aims to identify where courses and education programmes are being provided, whether national curricula exsist and if so what are the core elements of these programmes that could be adopted by all providers of education through the EAPC.  Centres of excellence, where they exsist will be identified, and course curricula scrutinised for core elements.

It has been suggested by a previous EAPC task force that in order to ensure that education programmes meet the needs of those participating, it is essential that the programmes are linked to the heatlhcare needs of the population and the strucutre of the healthcare system.  This calls for those responsible for the development of the programme to have a sound understanding of:

  1. Paediatric palliative medicine and palliative care
  2. Principles of adult learning
  3. Organisational planning
  4. Partnership between place of care and place of training
  5. Awareness of the politics of healthcare and delivery and education at the local level (EAPC Task Force on Nurse Education, 2004)

These issues will also be considered by the Paediatric palliative care education task force.

Milestones:

Identify education programmes currently provided for healthcare professionals working with children with life-limiting conditions

  1. Develop preliminary questionnaire (questionnaire 1) to obtain baseline data and contact details for those involved in paediatric palliative care education  (April 2010)

  2. Circulate questionniare:
    • Through participants attending European Paediatric palliative care course (April 2010)
    • Via the EAPC database to all representative organisations throughout Europe (May 2010)
    • To others identified during the EAPC mapping of paediatric palliative care services (Autumn 2010)

  3. Develop a second more detailed questionnaire requesting  specific information to be sent to those identified in  questionnaire 1 (Autumn 2010)

  4. Assess responses to questionnaire (Early 2011)

  5. Compare and identify core components of curricula (Spring 2011)     
          
  6. Compile report (Summer 2011)

Recognise and utilise work of previous EAPC task forces on education including: nursing, physicians, and psychologists -ongoing

Liaise and collaborate with colleagues throughout Europe regarding education programmes provided -ongoing

Members:

Julie Ling (Chair)                              Ireland
Wilma Henkel (Co-Chair)                 Germany

Matthias Schell                                 France
Richard Hain                                     UK
Anna Garchakova                             Belarus                       
Piera Lazzarin                                  Italy
Danai Papadatou                             Greece

Partners:
Fondazione Maruzza Lefebvre D’Ovidio Onlus, Rome

Contact details chair:
Julie Ling, Trinity College Dublin, School of Nursing and Midwifery
E-mail:


We would like to contact other members of the EAPC who are working in paediatric palliative care. You can download here a brief questionnaire asking for contact details of those working in education in paediatric palliative care in your country. We would much appreciate if you can complete this and return it to:

Wilma Henkel
Vodafone Foundation Institute and Chair for Children's Pain Therapy and Paediatric Palliative Care
email:

 


 

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