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updated: 25 August 2009
Miscellaneous
(The EAPC is not responsible for the content of external internet sites listed)
Pallipedia, a free online palliative care dictionary to be built by the international community, under the auspices of IAHPC. The dictionary is housed in www.pallipedia.org and offers two options to visitors:
1. Searching for a term or concept related to the field of Palliative Care. The searching capability includes stop words and query language.
2. Submitting a term or concept related to the field of Palliative Care. Accepted terms and concepts are automatically indexed in alphabetical order.
AAHPM Launches www.PalliativeDoctors.org, a new consumer Web site that explains the specialty of hospice and palliative medicine and its benefits to patients and families.
The Web site:
* Highlights palliative medicine and its broader role in helping patients with all types of serious illness.
* Provides information on how to find a hospice and palliative medicine specialist.
* Includes links to various hospice and palliative care resources and related sites.
Asbestos.com www.asbestos.com
features information on asbestos, mesothelioma, and other cancers that are caused by asbestos exposure (lung cancer, breast cancer, prostate cancer, etc.).
Mesothelioma.com www.mesothelioma.com
a leading web resource for those affected by mesothelioma, a rare form of cancer that is caused by exposure to asbestos. “Mesothelioma Treatment” section provides well-researched and up to date content focused on mesothelioma diagnosis and treatment.
ReachMD www.reachmd.com
an innovative multi-channel communications platform for medical professionals, will air a new series exploring the latest clinical issues, trends and controversies in Hospice and Palliative Medicine on XM Satellite Radio Channel 160 and simulcast via ReachMD Online. ReachMD is proud to partner with the American Academy of Hospice and Palliative Medicine (AAHPM), to bring Perspectives in Palliative Medicine to thousands of medical professionals. ReachMD's multi-channel platform includes satellite radio and online programming that can be accessed through any XM radio, digital media device or personal computer. ReachMD's original programming includes interviews with world-renowned physicians covering professional topics within clinical medicine, treatment, research, executive management, government policies, technology and global health issues, among others. To access ReachMD's original programming, visit ReachMD at www.reachmd.com or XM Channel 160.
Malcolm Payne's blog http://blogs.stchristophers.org.uk/
focuses on developments in social care and social work that affect palliative and end-of-life care. It is part of the information work of St Christopher's Hospice, London.
For all those who want to join an online community where people think that social care and social work are important in end-of-life and palliative care and end-of-life care needs a higher profile in social care.
theconferencewebsite.com www.medical.theconferencewebsite.com/
the free website for the display of Medical conferences and courses for the medical profession.
Palliative Care Network www.palliativecarenetwork.com
Using widely available internet technology, Palliative Care Network provides a platform for palliative care professionals to teach, interact, and exchange ideas with fellow colleagues in places around the world where the knowledge gap is wider than the technology gap. Visit the first online community exclusively for Palliative Care Professionals at www.pcn-e.com/community
New Social Arena for Carers and Care Sector Workers www.carersconnect.com. A new website and forum has been developed for Carers, whose domestic situation can often be isolating and those who work in the Care Sector for whom unsociable hours and stressful situations may well affect their social life. By sharing experiences with others who understand, in order to lighten the load and have some fun, an ingredient often missing when undertaking a caring role.
Get Palliative Care http://www.getpalliativecare.org. Valuable information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Terminal illness website: www.terminalillness.co.uk/home.htm focused on coping with a terminal illness as a sufferer, relative or friend, which I thought may be of interest to your visitors. A particularly relevant/useful page to your site is at: www.terminalillness.co.uk/CareOptionsCategory.htm
Grieving Center, USA. is a media rich destination that offers elements of television, with videos providing a wide range of information, along with interviews and music from real life memorial services. The channel includes advice on planning memorial services and explains bereavement counseling and coping strategies.
http://www.grievingcenter.org
National internet radio show, Patient Power.
PP debuted in February 2005 and is a weekly show hosted by Andrew Schorr, eleven-year leukemia survivor, patient educator and patient advocate. The show features renowned medical experts on topics that include cancer, pain, diabetes, and heart specialists, as well as experts in clinical trials and top pharmacists. The show serves to bring patients together in a radio and Internet community to help navigate an often inhospitable healthcare system.
http://www.patientpower.info
Death signs and symptoms, USA
http://hospice-cares.com/hands/signs.html
Carers support. Great Britain
http://www.kingsfund.org.uk/eHealthSocialCare/html/carers.htm
Istituto L. Maestroni", Italy
http://www.istituto.org/en/en_ist_main.htm
CancerNausea.com: Global Website Launched to Patients Suffering from Chemotherapy and Radiation induced Nausea and Vomiting, Italy
http://www.CancerNausea.com
Grieflink, Australia
http://www.grieflink.asn.au/frameset.html
Soins Palliatifs - sites prancophones, France
http://www.chu-rouen.fr/ssf/palliafr.html
HELP helpful links to palliative care, UK
http://www.dundee.ac.uk/meded/help/indexb.htm
Palliative medicine mailbase mailing list, UK
http://www.mailbase.ac.uk/lists/palliative-medicine/
Palliative drug information for healthcare professionals, UK
http://www.palliativedrugs.com/
Quality Standards for local carers support, UK
www.carers.gov.uk
Promoting excellence in end-of-life care, USA
http://www.promotingexcellence.org/
Office of Inspector General: Enhanced Controls Needed to Assure Validity of Medicare Hospice Enrollments, USA
http://www.hhs.gov/progorg/oas/reports/region5/59600023.htm
Seeing the difference, USA
http://seeingthedifference.berkeley.edu/
American College of Physicians: Home Care Guide for Advanced Cancer, USA
http://www.acponline.org/public/h_care/
Facts on dying, USA
http://www.chcr.brown.edu/dying/factsondying.htm
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