Family Satisfaction with end of life care in long-term care facilities
Vohra, J.U., St. Joseph's Health System Research Network, Hamilton, Canada, Brazil, K., McMaster University, St. Joseph's Health System Research Network, Hamilton, Canada, Hanna, S., McMaster University, Hamilton, Canada, Abelson, J., McMaster University, Hamilton, Canada, Szala-Meneok, K., McMaster University, Hamilton, Canada

A mailed survey collected data from 233 family members of deceased longterm care residents in order to explore family perception of end of life care in six long-term care facilities. The study examined the utility of the Family Perception of Care Scale, to examine family satisfaction and resident characteristics. The instrument displayed internal consistency and was found to consist of four subscales: resident care, family support, communication and rooming. Overall, family members were satisfied with end of life care. Pain control was the top family priority for care. Place of death was the only significant predictor explaining 8% of the variation in overall satisfaction, whereas family members of residents who died at the facility were more satisfied than those who died in hospital. Open-ended data, volunteered by the survey respondents, outlined specific examples of concerns with care, which may be used to direct care improvement. Future studies should consider a mixed method approach when studying satisfaction and dissatisfaction with end of life care in long-term care facilities. In this way, overall ratings for care can be collected to describe family member's opinions of care, along with specific narrative examples to help direct care improvement.