Methodology for Patient Centered Needs Assessment in Palliative Care Heimerl, Katharina, IFF, Vienna, Austria, Reitinger, Elisabeth, IFF, Vienna, Austria |
Objective of the paper: The objective of the paper is to discuss the methodological possibilities and challenges when we attempt to combine social intervention (quality development) and research. Aim of the study: The province of Vorarlberg inWestern Austria has decided to engage in a process of planning integrated palliative care at regional level. The planning project was supported by a research project conducted by the Institute ‘‘IFF-Palliative Care und Organisational Ethics’’. The crucial question throughout the entire planning and research process was: ‘‘How can we involve the stakeholders in the project?’’
Methods: The research was conducted in four parts: 1. Round Table Palliative care 2. Reconstruction of patients careers at the end of life 3. Interviews with palliative care patients 4. Quantitative needs assessment. Each research part involved key persons and stakeholders in the data collection and analysing process. Methodological pitfalls and strengths will be discussed.
Results and Conclusion: The research and planning process resulted in a concept for integrated palliative care in Vorarlberg that is now implemented step by step. Research that aims at contributing to quality development and implementation of integrated palliative care has to involve the stakeholders and establish structures for discussion and management of knowledge that is generated by the research.
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