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PAEDIATRIC PALLIATIVE CARE – helpful links
• Centre interdisciplinaire des droits de l'enfant http://www.lecide.be/
• The International Children’s Palliative Care Network (ICPCN) is a global network of children’s hospice and palliative care services: http://www.icpcn.org
• PaedPalCare – An international email discussion group for those working with children with life-limiting conditions. The group is hosted by ACT and currently has over 600 members across the world. To join the group send a blank email to
• Materials on paediatric palliative care.
IPPC – the Initiative for Pediatric Palliative Care – a consortium of organisations that work together to improve care and quality of life of children and families. It is an initiative of EDC’s Centre for Applied Ethics and Professional Practice (CAEP). Website offers some useful resources including quality improvement tools, videos and a curriculum which is under development. More resources are planned – you may have to register to download tools. Website: http://www.ippcweb.org
• ACT is the only organisation working across the UK to achieve a better quality of life and care for every life-limited or life-threatened child or young person and their family. http://www.act.org.uk
• IBISCUS (Onlus) Lega per la ricerca ed il trattamento della leucemia e dei tumori infantili, http://www.ibiscus.eu/
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